Have Any Questions?
+91 - 87708-69677
+91 - 88390-72450
Reg. Office Address
Sethi Nagar, Ujjain MP 456010
Our Registration No.
07/33/01/15656/19

+91 - 87708-69677
+91 - 88390-72450
Sethi Nagar, Ujjain MP 456010
07/33/01/15656/19
411 University St, Seattle
A better life can be lived even with thalassemia. Come and attend this two-day workshop and consultation camp for better life management, diagnosis and treatment.
Children will get guidance and consultation from the country’s reputed and famous doctors – hematologist, pathologist, hormone specialist etc.
In this workshop, HLA typing of thalassemia major children will be done free of cost along with their siblings and parents. Donor registry will also be done in the camp.
Other attractions —
Cultural programs and competitions
We request all patients suffering from thalassemia and sickle cell to come with their siblings and get free HLA testing done. This test can be an important step towards your healthy life in future.
➡️ To attend the workshop:
✔️ Patients suffering from thalassemia and sickle cell should come with their siblings. Registration before coming is mandatory.
✔️ Food and accommodation will be provided free of cost to registered children and parents.
✔️ This test is completely free.
✔️ All reports will be checked by qualified doctors.
✔️ Eligible patients will be provided necessary guidance for further treatment.
Free or low-cost blood tests to identify carriers early and prevent the birth of affected children.
We are a dedicated team of volunteers, and social workers united by a single vision – a Thalassemia & Sickle Cell Free India. Our organization began with a small group of concerned individuals who witnessed the devastating impact of these genetic blood disorders on families. We realized that prevention is possible, and awareness is the key.
Promote widespread awareness about Thalassemia and Sickle Cell Disease, ensuring individuals undergo carrier testing before marriage or childbirth to prevent genetic transmission.
Provide emotional, medical, and financial assistance to those affected, including access to regular blood transfusions, counseling, and guidance on long-term care.
Work with government bodies, healthcare providers, and institutions to make screening mandatory and accessible, while ensuring sustainable healthcare solutions for all.
Thalassemia is a genetic blood disorder that affects the body’s ability to produce hemoglobin, leading to anemia. It is inherited from parents and can range from mild to severe (Thalassemia Major).
Sickle Cell Disease is a hereditary blood disorder where red blood cells are shaped like sickles or crescent moons, making it difficult for blood to flow smoothly, causing pain, organ damage, and other complications.
Both Thalassemia and Sickle Cell Disease are genetic. If both parents are carriers, there is a 25% chance with each pregnancy that the child will have the disease.
Currently, the only potential cure is a bone marrow transplant, which is expensive and not always possible. However, prevention through screening is highly effective.
Prevention is possible by:
Carrier screening is a simple blood test to check if a person carries the gene for Thalassemia or Sickle Cell Disease. Early detection helps in making informed family planning decisions.
Everyone, especially those from communities with higher prevalence, should get screened before marriage or starting a family.
Treatment often includes:
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