loader image
Over 10 years we help companies reach their financial and branding goals. Maxbizz is a values-driven consulting agency dedicated.

Gallery

Contact

+1-800-456-478-23

411 University St, Seattle

maxbizz@mail.com

Together, We Can Create a Thalassemia & Sickle Cell Free Nation.

Join our movement to fight, prevent, and eliminate these inherited blood disorders through awareness, prevention, and support.

Our Recent Event :

3rd National Thalassemia & Sickle Cell Conference at Neemuch M.P.

Happened on - 13th & 14th Sept 2025 for Thalassemia Warriors & Parents

About This Event

3rd National Thalassemia & Sickle Cell Conference

A better life can be lived even with thalassemia. Come and attend this two-day workshop and consultation camp for better life management, diagnosis and treatment.

Children will get guidance and consultation from the country’s reputed and famous doctors – hematologist, pathologist, hormone specialist etc.

In this workshop, HLA typing of thalassemia major children will be done free of cost along with their siblings and parents. Donor registry will also be done in the camp.

Other attractions —
Cultural programs and competitions

We request all patients suffering from thalassemia and sickle cell to come with their siblings and get free HLA testing done. This test can be an important step towards your healthy life in future.

➡️ To attend the workshop:
✔️ Patients suffering from thalassemia and sickle cell should come with their siblings. Registration before coming is mandatory.

✔️ Food and accommodation will be provided free of cost to registered children and parents.

✔️ This test is completely free.

✔️ All reports will be checked by qualified doctors.

✔️ Eligible patients will be provided necessary guidance for further treatment.

Mission

A future where no child is born with Thalassemia or Sickle Cell Disease.

We envision an India where every individual is aware of their genetic health, where timely screening is a norm, and where compassion drives collective action to eliminate these disorders.

Awareness Campaigns

Workshops, seminars, and digital outreach in schools, colleges, villages, and urban centers to spread knowledge about prevention.

Screening & Testing Camps

Free or low-cost blood tests to identify carriers early and prevent the birth of affected children.

Patient Care & Support

Financial aid for treatment, counseling for families, and assistance with blood transfusions.

Advocacy & Policy Updation

Collaborating with lawmakers to integrate mandatory screening into public health programs.
About Us

Thalassemia Jan Jagran Samiti MP

We are a dedicated team of volunteers, and social workers united by a single vision – a Thalassemia & Sickle Cell Free India. Our organization began with a small group of concerned individuals who witnessed the devastating impact of these genetic blood disorders on families. We realized that prevention is possible, and awareness is the key.

Our Objectives

Let's Make This Nation Sickle Free

Our organization began with a small group of concerned individuals who witnessed the devastating impact of these genetic blood disorders on families. We realized that prevention is possible, and awareness is the key.

Prevent New Cases Through Awareness & Screening

Promote widespread awareness about Thalassemia and Sickle Cell Disease, ensuring individuals undergo carrier testing before marriage or childbirth to prevent genetic transmission.

 

Support Patients & Families in Their Journey

Provide emotional, medical, and financial assistance to those affected, including access to regular blood transfusions, counseling, and guidance on long-term care.

 

Advocate for Policy Change & Public Health Integration

Work with government bodies, healthcare providers, and institutions to make screening mandatory and accessible, while ensuring sustainable healthcare solutions for all.

Frequently asked questions

About Thalassemia & Sickle Cell

What is Thalassemia?

Thalassemia is a genetic blood disorder that affects the body’s ability to produce hemoglobin, leading to anemia. It is inherited from parents and can range from mild to severe (Thalassemia Major).

What is Sickle Cell Disease?

Sickle Cell Disease is a hereditary blood disorder where red blood cells are shaped like sickles or crescent moons, making it difficult for blood to flow smoothly, causing pain, organ damage, and other complications.

How are these diseases inherited?

Both Thalassemia and Sickle Cell Disease are genetic. If both parents are carriers, there is a 25% chance with each pregnancy that the child will have the disease.

Can Thalassemia or Sickle Cell be cured?

Currently, the only potential cure is a bone marrow transplant, which is expensive and not always possible. However, prevention through screening is highly effective.

How can these diseases be prevented?

Prevention is possible by:

  • Getting tested for carrier status before marriage or childbirth.
  • Genetic counseling for carrier couples.
What is carrier screening and why is it important?

Carrier screening is a simple blood test to check if a person carries the gene for Thalassemia or Sickle Cell Disease. Early detection helps in making informed family planning decisions.

Who should get screened?

Everyone, especially those from communities with higher prevalence, should get screened before marriage or starting a family.

How are Thalassemia and Sickle Cell treated?

Treatment often includes:

  • Regular blood transfusions
  • Iron chelation therapy to remove excess iron
  • Pain management and supportive care for Sickle Cell patients
How can I support the cause?

You can:

  • Volunteer for awareness drives
  • Donate to support patient care and screening camps
  • Organize blood donation camps in your community
Child Wing

Our Thalassemia Warriors

Our Thalassemia Warriors are the true strength of Thalassemia Jan Jagran Samiti (TJJS). They are patients, caregivers, volunteers, and supporters who have turned their personal struggles into a powerful force for change. Despite facing daily challenges, they stand strong with courage, resilience, and hope.
Child Wing - Varsha Panwar
Varsha Panwar Thalassemia Warrior
Child Wing - Jeevesh
Jeevesh Thalassemia Warrior
Child Wing - sakshi porwal
Sakshi Porwal Thalassemia Warrior
Child Wing - Messara
Messara Thalassemia Warrior
Child Wing - harsh kori
Harsh Kori Thalassemia Warrior
Child Wing - aksh malakar
Aksh Malakar Thalassemia Warrior
Child Wing - vaibhav rai
Vaibhav Rai Thalassemia Warrior
Child Wing - mamta dayma
Mamta Dayma Thalassemia Warrior
Child Wing - vaibhav soni
Vaibhav Soni Thalassemia Warrior
Child Wing - dipak dawar
Dipak Dawar Thalassemia Warrior
Child Wing - bhawana parihar
Bhawana Parihar Thalassemia Warrior
Board Members

Our Passionate Leaders

Our Board brings together passionate leaders, medical experts, and social changemakers committed to achieving a Thalassemia & Sickle Cell Free India. With diverse expertise in healthcare, policy making, community, they guide our mission with vision, integrity, and dedication.

Our Associated Organizations