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about thalassemia jan jagran samiti

An Initiative for a Thalassemia & Sickle Cell Free Society

With the dream of a Thalassemia Free Madhya Pradesh, in 2018, in the city of Baba Mahakal, the Raktmitras working for Thalassemia and blood donation in their region got together and this took a huge form which is today known as the Thalassemia Jan Jagran Samiti Madhya Pradesh in Madhya Pradesh. The organization has decided to expand its objectives and work on sickle cell and hemophilia as well and is continuously working on it. Today, the Thalassemia Jan Jagran Samiti is working in various districts of Madhya Pradesh.

Our Objectives

  • Prevent New Cases Through Awareness & Screening - Promote widespread awareness about Thalassemia and Sickle Cell Disease, ensuring individuals undergo carrier testing before marriage or childbirth to prevent genetic transmission.
  • Support Patients & Families in Their Journey - Provide emotional, medical, and financial assistance to those affected, including access to regular blood transfusions, counseling, and guidance on long-term care.
  • Advocate for Policy Change & Public Health Integration - Work with government bodies, healthcare providers, and institutions to make screening mandatory and accessible, while ensuring sustainable healthcare solutions for all.
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PROTECTION
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PREVENTION
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SUPPORT

PROTECTION

Safety / Care / Shield
How It Works & How We Do It

Protection means safeguarding both individuals and communities from the long-term challenges of Thalassemia and Sickle Cell Disease. Our approach begins with spreading knowledge—because awareness is the strongest shield. We conduct regular health awareness workshops, organize voluntary blood donation camps, and promote genetic counseling so that people understand their health risks and act accordingly.

For patients, protection also means ensuring they have timely access to safe blood transfusions, proper medical guidance, and emotional care. By building a network of donors, healthcare professionals, and volunteers, we create a safety net that helps families deal with the uncertainties of these disorders. Every step we take toward protection strengthens the foundation of a healthier society.

PREVENTION

Awareness / Screening / Stop
How It Works & How We Do It

Prevention is the most powerful tool in our fight against inherited blood disorders. While treatment is lifelong and often challenging, preventing new cases is possible and effective. Our mission emphasizes premarital and prenatal screening, which can identify carriers and prevent the risk of two carriers having an affected child.

We also run large-scale community screening programs, reaching schools, colleges, and rural communities where awareness is often low. Through counseling sessions, individuals and families learn how genetics work, how the disease is passed on, and what steps they can take to safeguard their children’s future. By normalizing genetic screening as a routine health practice, we envision an India where no child is born with Thalassemia Major or severe Sickle Cell Disease.

SUPPORT

Help / Aid / Hope
How It Works & How We Do It

Support goes beyond medical aid—it is about walking hand in hand with patients and families through their entire journey. Living with Thalassemia or Sickle Cell Disease is not easy. Patients require regular blood transfusions, iron chelation therapy, and consistent medical supervision. Many families struggle with the financial, emotional, and social challenges that come with the diagnosis.

We provide financial assistance for treatment, organize blood donation drives to ensure a steady supply for patients, and offer psychological counseling to help families cope with the stress and uncertainty. Beyond treatment, we also help patients access education, skill training, and opportunities to live a dignified life.

Support also means giving families hope—the assurance that they are not alone in this fight. By connecting patients with healthcare providers, donors, and community resources, we create a strong network of compassion and care that uplifts lives every day.