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Frequently asked questions

About Thalassemia & Sickle Cell

What is Thalassemia?

Thalassemia is a genetic blood disorder that affects the body’s ability to produce hemoglobin, leading to anemia. It is inherited from parents and can range from mild to severe (Thalassemia Major).

What is Sickle Cell Disease?

Sickle Cell Disease is a hereditary blood disorder where red blood cells are shaped like sickles or crescent moons, making it difficult for blood to flow smoothly, causing pain, organ damage, and other complications.

How are these diseases inherited?

Both Thalassemia and Sickle Cell Disease are genetic. If both parents are carriers, there is a 25% chance with each pregnancy that the child will have the disease.

Can Thalassemia or Sickle Cell be cured?

Currently, the only potential cure is a bone marrow transplant, which is expensive and not always possible. However, prevention through screening is highly effective.

How can these diseases be prevented?

Prevention is possible by:

  • Getting tested for carrier status before marriage or childbirth.
  • Genetic counseling for carrier couples.
What is carrier screening and why is it important?

Carrier screening is a simple blood test to check if a person carries the gene for Thalassemia or Sickle Cell Disease. Early detection helps in making informed family planning decisions.

Who should get screened?

Everyone, especially those from communities with higher prevalence, should get screened before marriage or starting a family.

How are Thalassemia and Sickle Cell treated?

Treatment often includes:

  • Regular blood transfusions
  • Iron chelation therapy to remove excess iron
  • Pain management and supportive care for Sickle Cell patients
How can I support the cause?

You can:

  • Volunteer for awareness drives
  • Donate to support patient care and screening camps
  • Organize blood donation camps in your community